"Happy Mother's Day to everyone !"
Elijah's Legacy- Digeorge Syndrome
A road less traveled...
Latest Activity
Grammie posted a status"Been busy with little Ethan he's had a few ups n downs but all is good now !"
Grammie posted a status"Please pray for Ethan, been in the hospital since Christmas night .
Thanks and Happy NEW YEAR to you all :)"
Grammie replied to Grammie's discussion I'm pregnant and I have DiGeorge Syndrome"Ethan is 6 months old now ; and is showing NO signs of DiGeorge syndrome! His heart is doing FANTASTIC ! He is not on any heart meds either. He is truly a miracle , God has blessed us so with this little guy!"
Grammie replied to Grammie's discussion G-TUBE versus FEEDING TUBE...WHAT ARE YOUR THOUGHTS?"Ethan has been on the g-tube now for 6 months. He has had a couple of infections that we were told were bacterial and could be expected with a g-tube. Janet, his mommy, does a great job of keeping the site clean and 'pretty' . Most of the…"
Forum
I'm pregnant and I have DiGeorge Syndrome 1 Reply
Started by Grammie. Last reply by Grammie Dec 18, 2011.
G-TUBE versus FEEDING TUBE...WHAT ARE YOUR THOUGHTS? 1 Reply
Started by Grammie. Last reply by Grammie Dec 18, 2011.
Tetrolagy of fallot 1 Reply
Started by Grammie. Last reply by Grammie Jun 4, 2011.
This site is dedicated to the memory of my grandson, Elijah Caldwell Marsh. To help families with DiGeorge find the answers they need.
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My second child is on the way!!!
Hey everyone-
I just found out bout five months ago we were expecting another child which was wonderful we were so exstatic. Also, we were scared to because of what happened to our last child. But, now since I had found out that I was pregnant my doctors told me to do some tests called amnio fish test and so I did. Well of course it camed out positive…
ContinuePosted by janet marsh(elijahs mommy) on March 7, 2011 at 8:28pm
Update
It's been awhile since I've posted anything on here. I thought I'd give an update.
Not sure if I mentioned but I did graduate with my BS Degree in English in the summer of 2009 from MNSU Mankato, Minnesota!!! I have since worked as a temp, then part-time, now I have a full-time job! I'm in Rochester for good now, for quite awhile anyway. I have always tried to run away from the place where I was born, Rochester, but it seems to me that it keeps calling me back! My family has also been…
ContinuePosted by Lindsay on November 23, 2010 at 8:03pm — 3 Comments
Guardian Angel ( ELIJAH MARSH)
Elijah is my sunshine he makes everything bright and shine! I love him with all my heart cant wait to see him in heaven one day. Wished he was here with us to see him smile and playing but I know hes having fun in heaven. But for now hes our guardian angel we love him very very much and he is never be forgotten! I love you baby boy with all of my heart your my number one forever and ever! Love always mommy and daddy :)
Posted by janet marsh(elijahs mommy) on August 16, 2010 at 4:12pm
MY SON ELIJAH CALDWELL MARSH (THIS IS MY STORY )
On October 18, 2007 I saw this beautiful baby boy that I never dreamed of having. His name was Elijah Caldwell Marsh. When I first saw him I thought to my self what a beautiful baby boy that I had. When the doctors told me they had to sent him to another hospital I froze and couldnt think what could go wrong with my child. I was soooo angry and upset that I found out there was something wrong with my child. So after I got out from the hospital I transfer to another hospital… Continue
Posted by janet marsh(elijahs mommy) on August 16, 2010 at 11:30am — 1 Comment
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